Causes

0%

Advocacy and Legal

GOAL : 320000 $

RAISED : 0 $

Providing resources, legal connections, and workshops to help tamilies advocate for fair treatment and accommodations.

Read More

0%

Awareness Programs

GOAL : 190000 $

RAISED : 0 $

Increasing public and professional awareness through targeted campaigns and training about ultra-rare conditions.

Read More

0%

Advocacy Tools

GOAL : 42000 $

RAISED : 0 $

Equipping families with guides, toolkits, and workshops to confidently advocate for their child's needs in all settings.

Read More

0%

Family Support

GOAL : 150000 $

RAISED : 0 $

Offering respite, peer support, and family events to provide relief and community for caregivers and families.

Read More

0%

Specialized Support

GOAL : 334000 $

RAISED : 0 $

Connecting families to specialized medical professionals, telehealth options, and essential therapy resources.

Read More

0%

Research Funding

GOAL : 90000 $

RAISED : 0 $

Research Funding Supporting groundbreaking research to develop better diagnostics, treatments, and care for children with ultra-rare genetic conditions.

Read More