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Advocacy and Legal

GOAL : 320000 $

RAISED : 0 $

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Awareness Programs

GOAL : 190000 $

RAISED : 0 $

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Advocacy Tools

GOAL : 42000 $

RAISED : 0 $

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Research Funding

GOAL : 90000 $

RAISED : 0 $

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Specialized Support

GOAL : 334000 $

RAISED : 0 $

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Family Support

GOAL : 150000 $

RAISED : 0 $

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HELP EVERYONE

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Research Funding

Research Funding Supporting groundbreaking research to develop better diagnostics, treatments, and care for children with ultra-rare genetic conditions.

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GOAL : 90000 $

RAISED : 0 $

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Specialized Support

Connecting families to specialized medical professionals, telehealth options, and essential therapy resources.

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GOAL : 334000 $

RAISED : 0 $

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Family Support

Offering respite, peer support, and family events to provide relief and community for caregivers and families.

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GOAL : 150000 $

RAISED : 0 $

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Research Funding

GOAL : 90000 $

Specialized Support

GOAL : 334000 $

Advocacy and Legal

GOAL : 320000 $

Awareness Programs

GOAL : 190000 $

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